I started this really long post about my year so far and decided to condense it.
Lost job first week of January. Been looking ever since, many interviews, no offers.
I researched presidential candidates for about a month and made my choice the weekend before the Illinois primary. I’ve never felt this strongly about a candidate or learned so much about politics, democracy, republics, fascism, communism, oligarchy, plutocracy, trickle-down economics, free-market, capitalism, mainstream media blackout and bias, conservatives, liberals, neo-cons, Benghazi, the Humanitarian Party, fracking, the upper 1%, income inequality, LGBT issues, Texas’ attack on Roe vs. Wade, etc. Can you guess which candidate I voted for?
Hubby started getting sick mid-February. 1st full week of March off work, sick every day, by Friday, GI specialist and endocrine team worried due to increased liver enzymes and jaundice. Next week, went to work Monday, the 14th, Tuesday morning in ER feeling extreme pain and just unwell. Jaundice 12.1. Released after 5 hours, antibiotic, pain meds, follow up with PCP. Stayed home from work Tuesday, half day Wednesday, off Thursday, He followed up with PCP and he said, why did they release you, go back. Thursday, March 17 pm returned 2:00 to emergency room, released 7:30 pm, did a CT scan, more blood work – found a mass on his kidney, colitis, enlarged prostate. Half day Friday at work and brought home short term disability papers.
Monday, the 21st, dropped those off to PCP who said, you look terrible, go back to ER, threw up in parking lot on the way out. Went to ER, they finally admitted him, Billirubin now 20, ran MRI of liver, next day did liver biopsy, two days later did ERCP procedure to unobstruct major bile duct, which wasn’t obstructed. Still jaundice Friday, the 25th, said they could do no more, transfer to liver specialist in St. Louis. Finally got down there Sunday, they hemmed and hawed mainly we found out by Wednesday, the 30th when he was released, because the images and liver biopsy slides were not immediately forwarded to them. They did colonoscopy, couple small polyps, not cancerous, no other procedures, released. Liver team was supposed to follow up with appointment, I called them Monday, the 4th, had slides and had scheduled appointment for May 17. I said that’s not going to work, he’s getting weaker and sicker by the day.
Many calls on Tuesday and Wednesday, the 5th and 6th, to liver team and to GI doctor here, and by Wednesday, he was so weak, I had to take him back to St. Louis because liver team had to conclude their investigation that there was or was not liver damage and/or sign off on having the surgery for mass off kidney, which Urologist here in Springfield believed may actually be causing all his symptoms, it’s an extremely rare renal cancer called Stauffer’s Syndrome.
St. Louis did a few other images and tests and as of Thursday decided it wasn’t the liver, let’s see what the urologist says, get that mass off your kidney to be sure. He sat in hospital all weekend, not much going on, liquid diet, saw urologist Monday, and was released Monday evening the 11th.
We have appointment next Monday, the 18th, with liver team and urologist in St. Louis, and hope to have a date scheduled for the surgery, as right now, we see the surgery as the beginning of the end, that he can’t start “getting better” or “recovering” until the mass is gone.
He’s home, weak, careful of what he eats so he doesn’t get sick or blocked up – and taking a variety of pills to address the symptoms, not the cause. If needed, we have serious pain meds, but so far, hasn’t needed the super serious ones.
I still have to get our taxes done, as it’s been crazy for me going to hospital, staying at Dad’s when he was in St. Louis, driving a lot, and otherwise worrying WTF is going on and when we will have an answer and what will it take to get that.
That’s my F’ed up year so far, how about you?